We’ve been really lucky to receive boxes from Ticky at MakingSenseCIC that have inspired and guided some lovely sensory experiences during our time shielding. “makingsense@home is a MakingSenseCIC project to provide sensory resources and activity ideas in collaboration with artists and arts venues across North Wales. We are making sensory activity packs and digital resources for…
Tag: sibling
Returning to craft
It’s the 10th of January 2021. Dan has been shielding from Covid-19 since 17th March. We’ve not needed the focus from the creative challenge as much over the autumn, when shielding officially ended Dan was able to go out for distanced walks and bike rides. I also managed to track down an affordable inflatable hot…
Be creative challenge
Day 1, Pond life We started our Be Creative Challenge full of energy to have a new focus to the day. I made a plan for day 1 and ordered supplies with our supermarket delivery to create our delicious, gooey, sensory experience of a pond! I made a speeded up video of our pond experience…
Finding a focus
At the start of lockdown I noticed a lot of chat about what people were doing ‘to keep busy’. This was a bit of an odd concept to me which many carers will identify with. I had moved back into my parents house to shield my brother Dan. When you live with someone with PMLD…
Lockdown life
I was asked to write a short piece about how things currently are for us during the Covid-19 lockdown. It’s ATR-X awareness day today and yesterday was the first ever ATR-X day of remembrance so I thought I’d share. As cases of covid-19 arrived in the UK our family were taking steps to protect my…
I carry you
I carried youI carry you still You didn’t come from within, I didn’t carry youBut once you were hereMy heart and arms were fullI carried you.A fragile new born tethered by wiresWe grew together and I carried you.Deaf to the chides to be cautious, to ask others to carry you.In an instant you were takenTethered…
Happy New Year?
New Years Eve is often tough and even if you’re in a position to celebrate it can be a pain. Having to plan, book, pay more for entrance and transport plus the pressure of the night living up to expectations. I look at Facebook memories and can see I’ve had some lovely times over the…
Hollow Christmas
Needing to write something down today this Christmas Eve eve. The contrast with previous years is astounding. I usually brim over with festive love and excitement greeting everyone with a cheery “Happy Christmas Eve eve!” Last year I was thrilled to discover there was a radio station dedicated to Christmas and so Heart Christmas blared…
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